It's the same ol' story!

I have had a wonderful couple of weeks. I can't tell you how long it's been since I made dinner for my family. No one can understand how hard it is to ly in bed night after night and listen to your family continue on without you. So you can imagine how wonderful these few weeks have been both for me and my kids. Too bad for my husband, he's been on a three week reserve deployment and missed out. The past week hasn't been as good and I spent the past two days in the bedroom most of the day. Then in comes today - cloudy and thunderstorms in the forecast. Now I know why I've had a not so good week.

I spoke to a lady last night far a good hour and she's newly diagnosed and dealing with the same ol' story of expecting any neurosurgeon to know chiari only to go home from her appointment discouraged. I was glad to be able to help her know it wasn't a hopeless cause. That she like so many others of us is dealing with inexperienced nsg.'s who believe they know all they need to about ACM when in actuality they don't. My heart goes out to this lady and all others who experience this. There is nothing more discouraging to know that things are seriously wrong and not have someone who understands and can make you feel like there is hope. So - glad to be there for you Robyn and happy to be there with you through what's ahead.